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Home » Celiac Disease » What are Celiac Disease Monitoring Tests, and How Do They Work?

What are Celiac Disease Monitoring Tests, and How Do They Work?

Last Updated April 17, 2023. Published July 11, 2019 Good For You Gluten Free

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What are Celiac Disease Monitoring Tests, and How Do They Work?

In this article, I discuss celiac disease monitoring tools that can help you determine the effectiveness of your gluten-free diet. This post contains affiliate links. Please discuss health concerns and changes to your diet with your doctor or healthcare provider. Please read my disclosures.

Most people are diagnosed with celiac disease and don’t know what to do besides follow a gluten-free diet.

Do they need to follow up with their doctor to discuss the effectiveness of the gluten-free diet? How do they know their celiac biomarkers are improving? And is there anything else they need to do besides “eat gluten-free” to improve their health?

According to a study by Beyond Celiac, 27 percent of nearly 1,500 adults with celiac disease did not see a healthcare provider post-celiac disease diagnosis. Why? Most celiac patients, and their doctors, don’t know what to do.

Many people with celiac disease face the messy task of tackling the gluten-free world with little assistance from their doctor and little knowledge about what to do next.

In this article, I discuss the “what’s next” part, helping celiac patients figure out how to monitor the effectiveness of their gluten-free diet and what they should do to manage celiac disease going forward.

Celiac Disease Monitoring Tests

A celiac disease monitoring test is a simple blood test used to determine if your body is making antibodies to gluten. Remember, your body can only make antibodies to gluten if you’re eating gluten.

Celiac monitoring tests look for the production of transglutaminase antibodies (tTG-IgA and tTG-IgG), which are found in the GI tract and are positive in 95 percent of people with celiac disease. One to three percent of the U.S. population is IgA deficient and cannot make IgA antibodies. This is why celiac screening and monitoring tests also check for IgG antibodies, which are found throughout the body, not just in the GI tract.

Celiac disease screening and monitoring tests also include DGP-IgA and DGP-IgG biomarker testing. DGP stands for deamidated gliadin peptide and is used to test for celiac disease in people who test negative for tTG antibodies.

Today, celiac patients have the power to monitor the effectiveness of their gluten-free diets with this at-home Celiac Monitoring Test. The test takes a few minutes to do in the privacy of your home, and you’ll receive the results via email in a few weeks thereafter.

The test comes with lancets, alcohol wipes, a collection tube, bandaids, and a return envelope. Here’s what it looks like when the test kit arrives at your house.

imaware celiac disease monitoring kit

I’m proud to say that seven years after following a strict gluten-free diet, my results are normal, which means my body is responding to the gluten-free diet.

tTG IgAtTG IgGDGP IgADGP IgG
NormalNormalNormalNormal

I repeated the test on the 11th anniversary of my gluten-free diet, and my results were again “normal,” giving me further comfort that what I’m doing is working.

However, as I wrote this article, one of my clients (I’ll call her Shari – not her real name) shared a letter she received from her doctor.

I worked with Shari last year, and at the time, she had been gluten-free for four years (upon a celiac disease diagnosis), but she says she didn’t take her diet seriously.

Fast forward one year, Shari cleaned up her diet and felt better. She performed a celiac monitoring test to see how her body was responding to the gluten-free diet.

Shari’s test found she experienced elevated deamidated gliadin. Her DGP-IgA level was 57.5 (normal would be less than 14.7). This means she was still consuming gluten, as her body couldn’t make antibodies to gluten if it couldn’t detect gluten.

I told Shari to closely examine if she might get accidental gluten exposure from medications, lip balms, cross-contamination, airborne flour, convection ovens, etc. She is doing an audit as I write this.

It’s challenging for me to know how to coach Shari going forward beyond helping her figure out where she is still getting exposed to gluten. It also could mean that she needs more time to heal.

Everybody is different. Some people with celiac disease feel better immediately, and their celiac disease biomarkers normalize within months of eating gluten-free. For others, unfortunately, it can take a year or more to normalize.

I also recommended to Shari that she test herself again in six months to see if her DGP-IgA biomarkers decrease. If it’s decreasing, it will at least show progress.

How Often Should You Monitor Your Biomarkers?

The Celiac Disease Center at the University of Chicago Medicine suggests that celiac patients monitor their celiac biomarkers after six months, then again on the one-year anniversary of their diagnosis.

I recommend checking your biomarkers on the anniversary of your celiac diagnosis every year, which I do to ensure my body responds to a gluten-free diet. Consider it an anniversary gift to yourself.

Strategies for Post Celiac Disease Management

Since there is no gold standard “here’s what you do after you’re diagnosed with celiac disease” protocol, I thought I would share a few pointers on what to do next (post-diagnosis):

(1) Implement a Strict Gluten-Free Diet

Eating a strict gluten-free diet is the first step, and boy, is it an overwhelming step. Please read my 10 Tips to Getting Started on a Gluten-Free Diet and my book, Dear Gluten, It’s Not Me, It’s You. Tackle the process bit by bit. You can do this.

Remember, even a little gluten can undo all of your hard work. No cheating, okay?

(2) Check Your Vitamin Levels

Most people with unmanaged celiac disease are nutrient-deprived since celiac disease impairs the small intestine, which is responsible for nutrition absorption.

If you have celiac disease, be sure to focus on eating a whole foods-based, nutrient-dense diet. Here are 10 Naturally Gluten-Free Foods Every Celiac Should Be Eating.

Also, be sure to take important supplements to rebuild and boost your depleted nutrient tank. Persistent nutrient deficiencies can make it harder to heal and build immunity.

Some doctors will issue vitamin level checks, although most insurance companies won’t cover it. If you’re concerned about your vitamin levels, you can monitor them with this at-home Vitamin B test and/or this at-home Vitamin D test.

(3) Monitor the Effectiveness of Your Diet

Take time to monitor your celiac biomarkers annually. You want to be assured that your gluten-free diet is working.

I perform a celiac monitoring test every year on the anniversary of my celiac diagnosis (April 12th). imaware makes it easy for me to monitor my biomarkers from the privacy of my home.

(4) Go Beyond Gluten-Free

Going gluten-free is overwhelming, but it’s sometimes not enough. It took me going gluten-free AND implementing various healing strategies to feel better.

I discuss these strategies in my book, Dear Gluten, It’s Not Me, It’s You, and in my article, How I Healed from Celiac Disease Naturally.

(5) Advocate for Yourself

Knowledge is power, and when you find discrepancies in your celiac monitoring test, or something doesn’t feel right, discuss your concerns with your doctor. No at-home test is a substitute for medical advice from a trained professional.

Additional Reading

You might enjoy these articles:

  • 8 Signs Your Gluten-Free Diet Is Working
  • Can You Be Too Gluten-Free? How to Balance Dietary Vigilance Without Losing Your Mind
  • The Rise of Late-Onset Celiac Disease
  • What Happens If You Eat Gluten When You Have Celiac Disease?
  • What to Expect When Getting Tested for Celiac Disease (Blood Test and Endoscopy)

Filed Under: Celiac Disease 5 Comments

Reader Interactions

Comments

  1. Melissa says

    May 26, 2021 at 6:50 am

    Thank you, Jenny. And thanks, Ethel, for your comment. I just got the message from my doctor that I have celiac disease. She didn’t even call me herself to discuss it. So, it looks like I’m on my own. I mentioned this to a friend of mine, a nurse, and her husband, a surgeon. They both said “You don’t look like you’ve got celiac disease.“ I don’t have the weight loss most people associate with celiac. In my case, I’ve recently gained quite a bit and I feel terribly bloated. I’m hoping that, like Ethel, healing from celiac will help me lose the weight and the bloated, puffy look that I’ve developed.

  2. Jenny Levine Finke, Certified Nutrition Coach says

    June 19, 2020 at 9:56 pm

    Ug! She doesn’t know and that is why she may not recommend it. You can monitor on your own if you want with the test I link to in the article.

  3. Angela DrakeAngela Drake says

    June 19, 2020 at 1:09 pm

    My PCP doesn’t understand why I want my markers tested or why she should see me on it. She is a great doctor otherwise but this disease seems off her treatment window. I am gf 7.5 years. Had endoscopy back then as well as blood work. She did agree to blood work at one year but since then, nope. Says it isn’t important. I don’t want to push it, afraid my health insurance won’t pay for it. I guess I keep on being gf. It is working.

  4. Jenny Finke, Certified Integrative Nutrition Health Coach says

    August 12, 2019 at 8:21 pm

    Have you had you vitamin D and B levels checked? That could impact energy

  5. Ethel Kirkpatrick says

    August 12, 2019 at 7:51 pm

    Don’t know about any of this stuff but I’m from Canada. When I asked my dr to check up on my celiac, she said… we don’t do that. Once you are celiac, you will always be celiac. No help from her so I’ve helped myself. I’ve been taking care of my body now like never before. I’ve lost 43 pounds so far. The tiredness is still there and I’m still weak. The pain I have from my fibro is less and I recover my health quicker… and best of all, I haven’t had to see my dr for the last 6 months. Have to go soon to get my thyroid meds but that’s about it. I wonder if she will recognize me… In any case, I’m certainly not done yet. Even my hair has responded! Thank goodness! 🙂

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Hi, I'm Jenny Levine Finke and am passionate about the gluten-free lifestyle. I'm a certified integrative nutrition coach and self-taught expert on [most] gluten-free things. I have celiac disease and know the struggles you're going through first-hand. This is why I've dedicated this blog to serving the celiac and gluten sensitive communities with important information, product and restaurant reviews, and simple recipes I hope you'll love. Read More…

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